Monday, June 15, 2009

crazy week and April rose update

Its going to be a crazy week for me and I am not sure if I will get time to update as I will be spending part of the week out of town for work.
But I did want to jump on very quickly to mention an update about the April Rose situation and mention a few points about it.
I want to thank those of you that emailed or reached out to me after my last post to ensure that I was in the loop on the situation and to see how I was taking that. Thank you. Your friendship, your concern, and your active participation in my life means a lot to me.
I have been following the story of April Rose and the latest findings in this scam. It has been upsetting to me at some turns but the truth of the matter is that 1.I am very relieved to find out that there is not really another baby with Trisomy 13 whose health conditions are so bad that she will die.I rejoice in life. Every moment and every breath of life is precious and to find out that there is NOT a baby whose life is cut so short... this brings me a giant sigh of relief.
2. I am thankful for the publicity for Trisomy 13 and hope that there will be more people educated about it and able in their lifetimes to be a support to someone who has or has had a child with it.( The publicity is thanks in part to an amazing friend of mine who sent an email request to Beccah to get her to direct support to our Trisomy 13 groups page ( which I am so proud of my friend for doing!)

And lastly, 3. I have been frustrated, angry, and slightly obsessed with the story as new updates came out. I am not going to try to wash over this last part by only mentioning the more positive first 2 points. I have been disappointed and at times depressed that someone could take a life experience that is so close to my own heart( and the hearts of many other moms) and exploit it in way that would draw attention to herself. But I will say that Beccah was/is an incredible writer and I would have followed her blog even if she had mentioned it was fiction.... maybe even more so. The things she wrote were things I myself could have thought at the time I was pregnant with Faith.

Hopefully I can update again soon, when I get back into town and settled in with my beautiful family.
I can't wait to update you all about our fabulous weekend trip to Muskogee and Tulsa Oklahoma!


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