I made up your nursery rhyme, just like I did for your Bubba and little Sis. I know you arent here for me to sing it to you, but every now and then I sing it anyway. It makes me smile. Singing is a refuge and healing thing for me. When you were in my belly I would sing songs to you everyday. When the days got really hard after we learned you were sick I would sing out, over and again, one song.
Be Thou my Vision, O Lord of my heart;Naught be all else to me, save that Thou art.Thou my best Thought, by day or by night,Waking or sleeping, Thy presence my light.
Riches I heed not, nor man's empty praise,Thou mine Inheritance, now and always:Thou and Thou only, first in my heart,High King of Heaven, my Treasure Thou art.
High King of Heaven, my victory won,May I reach Heaven's joys, O bright Heaven's Sun!Heart of my own heart, whatever befall,Still be my Vision, O Ruler of all.In those moments, singing these words gave me strength.... enough to make it through that day anyways. I often would think of a soldier or gladiator, preparing for battle.... and I would think of the family they would be preparing to leave and the hardship they might face.... and suddenly my hardship didnt feel so lonely in the world. Everyone faces hardships- all different kinds. I have never been alone in that- but still its easy to forget that we arent the only ones that face sorrow. Its easy to get caught up in feeling sorry for myself about all the things I miss out on with you- but one thing shines bright and shining like the sun above all those sour thoughts- and that is the joy of being able to love you and to be chosen by God to carry you for your short time here.When you were in my belly I would count your little kicks. You liked to lay on your left side in there and your persistant kicks would tap tap tap under my right rib cage. Once you were born you would shift your little body in your isolete to lay the same way.... curled a little and on your left side- with your hands resting around your omphalocele. It was sweet to see how you laid- as if you didnt know that the omphalocele is what made you so sick and was a delicate thing. After all, you spent your whole life in the womb with it just the way it was. You just rested your hands upon it as another extension of you- just as you would an arm or a leg or your face....... As I watched you lay there in that way I understood that you didnt know yourself any differently- that you would probably never see the difference- and that you embraced yourself wholely.
You would probably never know how different from normal you were.
All that you would know is that you were loved- deeply.And little girl- whew! Are you loved so deeply!