crazy week and April rose update

Its going to be a crazy week for me and I am not sure if I will get time to update as I will be spending part of the week out of town for work.
But I did want to jump on very quickly to mention an update about the April Rose situation and mention a few points about it.
I want to thank those of you that emailed or reached out to me after my last post to ensure that I was in the loop on the situation and to see how I was taking that. Thank you. Your friendship, your concern, and your active participation in my life means a lot to me.
I have been following the story of April Rose and the latest findings in this scam. It has been upsetting to me at some turns but the truth of the matter is that 1.I am very relieved to find out that there is not really another baby with Trisomy 13 whose health conditions are so bad that she will die.I rejoice in life. Every moment and every breath of life is precious and to find out that there is NOT a baby whose life is cut so short... this brings me a giant sigh of relief.
2. I am thankful for the publicity for Trisomy 13 and hope that there will be more people educated about it and able in their lifetimes to be a support to someone who has or has had a child with it.( The publicity is thanks in part to an amazing friend of mine who sent an email request to Beccah to get her to direct support to our Trisomy 13 groups page http://www.livingwithtrisomy13.org/) ( which I am so proud of my friend for doing!)

And lastly, 3. I have been frustrated, angry, and slightly obsessed with the story as new updates came out. I am not going to try to wash over this last part by only mentioning the more positive first 2 points. I have been disappointed and at times depressed that someone could take a life experience that is so close to my own heart( and the hearts of many other moms) and exploit it in way that would draw attention to herself. But I will say that Beccah was/is an incredible writer and I would have followed her blog even if she had mentioned it was fiction.... maybe even more so. The things she wrote were things I myself could have thought at the time I was pregnant with Faith.

Hopefully I can update again soon, when I get back into town and settled in with my beautiful family.
I can't wait to update you all about our fabulous weekend trip to Muskogee and Tulsa Oklahoma!

Always,
Micayla

Its not my universe.

I think Caedmon's Call said it best: " Late at night I wonder, sometimes I wonder why?"
I really wonder sometimes why things happen the way they do... why some days go so smoothly, and bring joy, and others don't.
I wonder why some days nothing will phase me and I experience Joy all the way until I close my eyes to go to sleep.... and why some days are filled with tears and anguish and anxiety deep into the night.
I also wonder why some children grow up big and strong and some children never make it to be born... or why some are only with us 9 days or 32 minutes like my dear friend Tami's daughter Angeliyah.
I wonder why there is so much hate in the world( although I know the answer is the Devil, becuase I know that God is love) but I wonder sometimes why that is even allowed to exist and why some people turn to it so freely while others live their whole lives trying to be good.
Yesterday another trisomy Baby named April Rose was born. She wasnt expected to make it alive to birth, nor live much longer after and yet she is still alive and still hear. Her mom and dad are living minute by minute.... trying to get as much time as they can to know her and love her before her time to part this earth comes. April's mom has been keeping a blog to chronicle the difficult pregnancy ( which can be found in my bloglist) and now becuase of this they are recieving hate mail and even a mutilated first picture of April with devil horns drawn on the image.
This mommy and daddy are struggling through difficult moments- some of the hardest moments in life- and in the midst of that someone or several someones feel the need to try to hurt them and say and do terrible things. It angers me and it saddens me.

Today is three weeks to the day that I started to experience bleeding and my miscarriage began. Since the pregnancy was still very early, it shouldnt have taken my body too long to process things... but now it is three weeks later and I am still experiencing the miscarriage. It is a constant reminder to me all day long of the little baby that I won't get to hold in my arms. I wonder why it is taking so long?
Someone sent me a very thoughtful message today which said that now Faith would have a little brother or sister in heaven with her. This really helped to calm my heart... but it made me sad too..... I wonder why something so comforting can also make me cry.....
Ultimately, all these things going on compound the grief that I still carry around for my little red head. Most days, I am able to walk this earth without questioning, just accepting my course in life with hope for what tommorrow brings.
Today though, like some days, I wonder why things happen the way they do in this universe and I have to remind myself that it is not my universe.

This is God's universe and God does things his way. You may have a better way, but you don't have a universe. - J Vernon McGee